Rome Event and Excerpt

I traveled to my hometown earlier this week to do a reading at Cafe Vinci. It was a perfect fall day, and I witnessed the peak foliage colors of orange, yellow, red, and maroon as I drove from Syracuse to Rome along Route 5. And it was a wonderful experience being surrounded by friends as I shared my story.

Here is a photo of me with Bill Vinci (left), the owner of Cafe Vinci, and two other childhood friends, Phil Schillaci and Bob Taylor.

I also thought I would share another excerpt from my memoir, Stunted: A Memoir of Delayed Manhood.

Chapter One: No Growth

In the early summer of 1984, as I prepared to enter high school in my hometown of Rome, New York, the feeling that I was different from other kids intensified. I had always been one of the shortest students in my elementary and junior high classes, but my lack of stature never held me back. I excelled academically, played competitive sports, and was popular with my classmates.

But now, while the other boys had added height and mass to their frames and surged with signs of puberty, I remained unaltered—a short, chubby figure with soft, feminine features. I had no summer growth spurt. No germinating of coarse fibers on the upper lip or patches of pubic or underarm hair. My high-pitched voice did not deepen, and I didn’t require deodorant because I rarely broke a sweat or reeked of body odor. The gap between me and the other kids widened, and I felt like I was standing in place on a deserted highway while they were whizzing past me in fast cars, squealing with laughter as they looked back at me in the rearview mirror.

Terror devoured me as I anticipated walking the halls of Rome Free Academy as a sophomore. I dreaded making the jump from ninth to tenth grade, going from the safety of Staley Junior High to the public high school in Rome, a squat, imposing building with a tan brick facade. I wondered how I could fit in if I still looked like a child—if my physical presence could not match the maturity of the other students.

Would bullies stuff me in a locker or douse my head in a toilet bowl? Would the boys call me names and the girls laugh at me for being so small? But when I started high school, the girls in my grade would not mock me; instead, they would consider me cute and cuddly, treating me like a little French poodle—a soft, sweet creature meant to pet and pamper but not date.

During that summer, I lifted weights, ran mile after mile, and performed numerous drills with a soccer ball as I intended to try out for the junior varsity soccer team at RFA. An underlying motivation drove me to push myself, as I believed if I did not grow in height, I would continue spreading out in width and would become a fat, short kid instead of just a shrimp.

Around this time, on a weeknight, one of my mother’s colleagues from the bank where she worked came to our house to have coffee and talk with my mother.

My mother, Carmella, began her professional career as an entry-level teller at Rome Savings Bank and rose to become a branch manager and later a compliance officer and assistant vice president. She baked cakes for employees on their birthdays, brought trays of Italian Christmas cookies to the office during the holidays, and invited co-workers to our house for coffee, dinner, and family celebrations. So it was common for people to visit from time to time.

Here’s me kissing my mom, Carmella, sometime in the late 1970s or early 1980s.

Sandra was a short woman with sandy-brown hair who sported round, silver glasses and had a pasty complexion. My mother must have informed Sandra about my growth concerns because when I came into the kitchen to grab a slice of zucchini bread, Sandra said, “Fran, do you mind if I tell you something?”

“Sure,” I said and sat down next to her. Mom’s ashtray was filled with cigarette butts, and smoke hung in the air. The women sipped coffee from green ceramic mugs, and a warm, yellow light emanating from an overhead tungsten bulb suffused the table, making the gold cross Mom wore around her neck sparkle.

“Your mom mentioned that you’re worried about not growing,” Sandra said.

“Yeah,” I said, glaring at Mom. Although I was annoyed at my mother for not respecting my privacy by sharing my secret fears with a stranger, something about Sandra’s polite and soft-spoken manner disarmed me, and I remained calm as I listened to her words.

She turned to me and said, “I just want you to know, my husband, Scott, is short and he looks young for his age. And do you know what?”

“What?”

“Honestly, it doesn’t make a bit of difference. I love him, and he’s no different from anyone else. He’s fine.”

“Thanks,” I said. My mother smiled at me because I didn’t storm off when Sandra mentioned my short stature, as I was prone to do when someone brought up my height or youthful appearance.

“He’s sensitive about it,” Mom said. “But like I told him, ‘His father’s short and I’m short, so he’s probably going to be short too.’ And he needs to accept that.” (Dad stood about five feet five inches tall, while Mom was about five foot tall.)

A photo of my father and me following my Confirmation in 1984.

“I know,” I said. But it doesn’t help me much now.”

“Don’t worry, Fran,” Sandra said. “You’ll grow soon.” I stayed at the table for a little longer before getting up and leaving the kitchen. I appreciated Sandra’s kind words, and I understood they came from her heart, motivated by a desire to assuage my concerns; but at the same time, I ignored her sentiments, casting them out of my mind as soon as I walked away.

I sought tangible results in my body—evidence of physical changes—not empty, pat reassurances that would do me no good when I strode through the hallways of a high school packed with tall and muscular male students.

Flash forward to a warm, sunny day later in the summer when my mother hosted a party at our house on a Sunday afternoon.

My best friend, Billy, and I were playing kickball in the backyard with a group of kids, mostly neighbors from our rural area in south Rome that I had invited to the party.

Bill Vinci and me after we graduated from sixth grade in 1981.

The air was redolent with the smell of fresh-cut grass, the sunlight had a soft, milky quality, and you could hear crickets chirping and the rush of cars speeding along State Route 365 behind our house.

Kids were scattered throughout the yard, and Billy rolled the ball to me as I stood at home plate, waiting to wallop it. But the game was suspended when Mom came around the side of the house and asked us to stop playing for a moment.

Mom and Sandra walked toward me, accompanied by a small, chubby, dough-faced man I presumed was Sandra’s husband. Mom introduced us. “Fran, this is Sandra’s husband, Scott. I wanted you to meet him.”

I greeted Sandra and shook Scott’s hand. After the introductions were made, Mom and Sandra walked away, rejoining the party, leaving Scott standing next to me at home plate. He wore glasses, a striped rugby shirt, and a baseball cap too small for his head; for some reason, whenever I recollect this scene, I conjure the image of a little beanie divided into red, green, and blue sections with a propeller on top, which I want to flick so I can watch it spin on Scott’s head.

During the break in the action, the players chatted among themselves in the field while Scott started addressing me like a teacher in an after-school special on TV. He didn’t waste any time with small talk, saying, “Fran, I just want you to know it’s OK to be short.”

As other people had done, he tried to tell me I would eventually grow, but he added an important disclaimer to the lesson he tried to impart. Using himself as an example, he told me that even if I remained short and young looking for my age when I became an adult, I could still have a normal, productive, happy life.

“Look at me,” he said. “I’m grown up, and I’m happily married.”

“OK, thanks,” I said. But I refused to look him in the eyes, and I didn’t listen to the words he spoke. I let them bounce off me in the sunlight. I had no use for them because they could not help me. I sought normalcy as a teenager. I needed growth and maturation in the present.

Here’s me, likely in mid-1980s.

I had no interest in being told everything would work out eventually. Eventually meant nothing to a fifteen-year-old boy. I couldn’t wait for “eventually” to come. I couldn’t see beyond the start of the school year in September. And I viewed myself as an athlete playing a game, not a boy needing a pep talk.

I yelled to Billy, asking him to resume the game and roll the ball to me; the other players got ready. I kicked a ball into the field and reached base safely. Standing on the white paper plate that served as first base, I cheered on the next “batter” as the inning stayed alive.

Scott stood a few feet from home plate, looking uncomfortable with his arms held stiffly at his sides. He watched the game for a little while longer and then sauntered away, disappearing around the side of the house. I think he was bored or annoyed by my lack of respect or lack of interest in his presence. Watching him walk away, I felt a twinge of guilt.

When we switched sides at the end of the inning and Billy’s team came in to “hit,” Billy asked me, “Hey, who was that guy?” I told him he was the husband of one of my mom’s co-workers.

“Oh, I thought he was a kid,” he said. “I was gonna ask him if he wanted to play.”

Reading and Reviews

For those in the Central New York area, I am doing a reading this week at Cafè Vinci in Rome, which is owned by my childhood friend Bill Vinci. The event is at 6 p.m. on Tuesday, Oct. 27.

Also, I wanted to share a couple recent reviews for Stunted: A Memoir of Delayed Manhood. One is from Manhattan Book Review, and blogger John Avery wrote another one. Here’s the full review.

I really like how the reviewer frames the story:

“A story this tied to physical vulnerability, sexuality, and shame during the exact years when those things feel most exposed and high-stakes—putting that on the page for anyone to read takes a kind of nerve that the book itself seems to be arguing is its own form of manhood. The writing doesn’t feel like it’s performing courage; it feels like it’s actually being courageous, which is a different thing entirely.

If you’ve ever felt like your body, your timeline, or your circumstances put you at odds with the version of adulthood everyone else seemed to be handed automatically, this memoir is going to speak to something you probably haven’t seen articulated quite this directly before. It’s not a book about overcoming a diagnosis in the triumphant, feel-good sense. It’s a book about redefining what it means to become a man when the body refuses to follow the script — and by the end, that redefinition feels like the real victory.”

And I really liked an animation that was included in one of the social posts for the review.

What’s Kraken Podcast

Earlier this summer, I was the guest on the podcast What’s Kraken with Jo Szewczyk. I had fun talking to Jo about writing, books, music, and life. Jo is the author of the memoir Surviving Gen X and the forthcoming novel Scarlet Shadows. You can follow him on Instagram @szewczyk.jo or find out more about him here.

The episode is also available on Spotify and Apple Podcasts.

Stunted: A Memoir of Delayed Manhood

Forthcoming is such a lovely word.

And I’m happy to share the cover image for my coming-of-age memoir, Stunted: A Memoir of Delayed Manhood, which is slated to be published later this year. It was a long, hard road to get here, but I am honored that the story has found a home with Toplight Books, an imprint of McFarland & Company.

Cover image for my memoir.

The book is also listed on Amazon, Bookshop, and Goodreads.

I began researching this project in June 2013 after marrying my wife, Pam, who has been a steadfast supporter, cheering me on along the way. I obtained medical records dating back to 1984 and incorporated journal entries from the early 1990s. So in many ways, I’ve been writing this memoir my whole life. The impetus to write the book sprang from a long blog post I wrote in December 2014 to mark the 30^th anniversary of my initial brain surgery at SUNY Upstate Medical University Hospital in Syracuse, New York.

At Walt Disney World in 1985, a few months after my initial brain surgery.

When I started working on the memoir, I realized I needed to study the genre, so I read the classics like Angela’s Ashes by Frank McCourt, The Liars’ Club by Mary Karr, This Boy’s Life by Tobias Wolff, Running with Scissors by Augusten Burroughs, Wild by Cheryl Strayed, Stop-Time by Frank Conroy, Eat, Pray, Love by Elizabeth Gilbert, I Know Why the Caged Bird Sings by Maya Angelou, and many, many others.

Between that initial blog post and the completion of the book, life intruded.

I had two brain surgeries, was diagnosed with rheumatoid arthritis, mourned the loss of my stepfather, Bill Ruane, my Uncle Fiore DeCosty (nicknamed Fee), and two cousins, Derek and Damon DeCosty. I published numerous poetry collections, wrote a play that was produced by a small theater in Las Vegas, produced a few documentary films, and earned two Emmy awards. I bought a house (reluctantly), and most importantly, became a father to my son, Colin, who will be ten years old next month and was diagnosed with autism in 2018.

The whole time I was living my life in the present while my head remained partly stuck in the time period from 1984 to 1995, covering the terrain of my high school experience in Rome, New York, my undergraduate years at St. John Fisher College (now named St. John Fisher University), in Rochester, New York, graduate school at American University in Washington, DC, and the start of my professional career back in my hometown of Rome and in Venice, Florida.

Here’s me in either my junior or senior year of high school or my freshman year at St. John Fisher College in Rochester, New York.

And as time elapsed and I wondered if I would ever finish the book, I drafted scenes, wrote a crappy first draft, completed multiple revisions on my own, and then hired developmental and line editors through Fiverr, wrote a book proposal, and sent out countless queries to agents and publishers who accept direct submissions from authors.

While I am ecstatic that the book will be published, I detest the necessity of the promotional phase. But it’s a reality I can’t escape. My intention is for readers to find some universal truth or connection to my personal story.

Here is the book description from the McFarland site.

Set between 1984 and the mid–1990s, this coming-of-age memoir follows Francis DiClemente’s experience of adolescence and early adulthood in a body that struggled to develop. Diagnosed with a rare brain tumor that led to hypopituitarism, DiClemente remained physically underdeveloped while his peers matured into young adulthood. As he navigated relationships and sexuality in college, it became evident that his prolonged experience with physical nonconformity fueled isolation, self-doubt, and shame.

This book explores the impacts of his condition on schooling, intimacy, and emerging adulthood, examining how physical differences shape identity formation. It reframes masculinity not as a function of physical development, but as an ethical and emotional practice grounded in empathy, resilience, and responsibility. Contributing to conversations on embodiment and self-acceptance, the work offers insight into the experience of living at odds with normative timelines of growth and belonging.

And I was very fortunate to have some gifted and generous writers provide blurbs for marketing.

“Francis DiClemente’s searingly honest memoir offers a vital perspective for anyone grappling with their own place in the world.”

—Shivaji Das, author of The Visible Invisibles

“Francis DiClemente and I met as teenagers on a baseball diamond in the summer of 1983, and while I have since gone on to work in a different sport populated by alpha males gifted with superhuman size, strength, and athleticism, I know of no better or stronger example of what manhood truly means than my friend. This moving story of self-discovery, which Francis courageously tells with raw honesty and vulnerability, reminds us that the journey toward fulfillment in life is inward, and should inspire us to be less judgmental—not only of others but ourselves.”

—Bob Socci, broadcaster, New England Patriots

“DiClemente’s journey becomes a lifelong battle, man against regrowing tumor. In these pages, he provides the most intimate details of how he learned to be a man while trapped in the body of a boy. Hopefully, his words, and his honesty, can reassure other boys and men grappling with masculine identity.”

—Angel Ackerman, author of the Fashion and Fiends horror series and founder of Parisian Phoenix Publishing

“This is a deeply moving testament to the quiet courage it takes to claim your identity in a world that insists on defining it for you. For anyone who has ever felt unseen or out of place, DiClemente offers a reimagined vision of identity rooted not in the body, but in the soul.”

—Brittany Terwilliger, author of The Insatiables

“Francis DiClemente has written a book on men and masculinity that should be not only savored but consulted by those men who, at some point in their lives, have questioned what their manhood means and what place it holds in society. And by those men I mean all men. This work might have been born of DiClemente’s many masculine hardships, but it becomes a celebration of what is best in us.”

—William Giraldi, author of The Hero’s Body

“DiClemente delivers an unflinching account of the brain tumor that disrupted normal growth and his participation in one of the first human growth hormone trials. …a touching and compelling memoir.”

—Carmen Amato, author of the Galliano Club historical fiction series

“Francis DiClemente tells it like it is—with no BS. This work is honest, human, and full of hope. I respect the courage it took to write it.”

—William Soldato, author of Under Too Long

“Francis DiClemente’s book is a courageous and beautifully crafted memoir that speaks to the quiet battles so many face in silence. With poetic clarity, brutal honesty, and emotional depth, he explores identity, masculinity, and the long road to self-acceptance. A powerful book.”

—Apple An, award-winning author of Las Crosses, Mother of Red Mountains, and Daughter of Blue City

I’m now working on a second book, which is a continuation of the story. There’s no timetable for completion.

One note about the cover.

My Uncle Fiore took my photo in 1985 at the New Jersey shore. We had traveled to New Jersey from Rome one early fall weekend to visit my cousin, Fiore, who was stationed at an Army prep school in Monmouth County, where he would spend a year before matriculating to the U.S. Military Academy at West Point. I remember listening to Bruce Springsteen’s Born in the U.S.A. album on my yellow Sony Walkman in the backseat on the way down from Rome to Jersey. I connected the song “I’m Goin’ Down” with our southbound travel, and I loved side two of the album, especially the songs “No Surrender,” “Bobby Jean,” and “My Hometown.”

41st Tumorversary

Today marks the forty-first anniversary of my first brain surgery. As I’ve written about before, on Dec. 12, 1984, when I was fifteen years old and a sophomore in high school, surgeons at SUNY Upstate Medical Center (now named Upstate University Hospital) in Syracuse, New York, removed a large craniopharyngioma that had engulfed my pituitary gland, leading to stunted growth and delayed puberty. Since then, I’ve had four additional surgeries and two Gamma Knife radiosurgery treatments at Upstate.

Posing with my parents prior to my surgery in 1984.

Prior to the initial surgery, in the fall of 1984, a scan of my head had revealed a cloudy mass in the sella region at the base of the skull, and the results of a follow-up CT scan with radiation contrast came a few weeks later.

I received the news about the brain tumor diagnosis from my father when he picked me up from wrestling practice on a cold November night. This essay describes that encounter.

Craniopharyngioma

After I put on my black wool pea coat, pulled a knit hat down around my ears, and slung my book bag over my shoulders, I pushed open the back door of the gym and walked outside to meet my father, who had parked behind the high school.

The cold air hit my face and stung my gloveless hands as I strode toward the car; a floodlight cast a large net of bright, white light on the pavement. Dad drove up, and I got in.

He left the car idling, and as I slid into the passenger seat and adjusted myself, he leaned over and kissed me on the cheek, his tan winter coat brushing against the steering wheel. I felt a trace of his beard stubble against my skin, and I could smell a faint odor of Aqua Velva or Brut combined with cigarette smoke. The heater hummed, and he lowered the blast of air and turned and looked at me. I wondered why we weren’t moving yet. He wasn’t crying, but he appeared on the verge of spilling emotions.

“What’s the matter, Dad?” I asked.

“Upstate called your mother today,” he said. He switched on the overhead light, reached into his jacket pocket, and pulled out a torn piece of paper. “Here,” he said, handing me the slip of paper, “this is what they think you have. I wrote it down, but I don’t think I spelled it right.”

In a slashing style in faint, blue ink, my father had scribbled a misspelling of the word craniopharyngioma. His voice cracked as he said, “It’s cranio-phah-reng . . . something like that . . . oh, I don’t know. It’s some kind of brain tumor.”

I looked at the paper as my father let out a sigh. He shook his head and said, “I prayed to God when you were born that this wouldn’t happen to you, that you wouldn’t have to go through the same thing I did.” His words referred to his health crisis as a teenager, one that caused small stature and delayed puberty and led to ridicule by his classmates.

Francis DiClemente Sr. was born with a hole in his heart, a ventricular septal defect. On June 12, 1959, when he was sixteen years old, pioneering cardiac surgeon C. Walton Lillehei performed open-heart surgery on him at the University of Minnesota Hospital, successfully repairing the defect.

The heart problem disrupted Dad’s high school years, and he faced a long recovery; but he rebounded after the surgery, lifting weights to become stronger and adding muscle to his thin frame. He grew to his final adult height, graduated high school from St. Aloysius Academy in Rome, and went to work at the city’s Sears Roebuck store.

After sharing the information with me, he pressed his lips together and shook his head again, and he seemed locked in position in the driver’s seat, unable to contend with the news, incapable of going through the motions of driving away. We clenched hands, and I said, “It’s OK, Dad. Don’t worry. But what do we do now? What’s next?”

“You have to go back there for more tests. You may need surgery.”

“All right,” I said. “It’s OK.”

“I hope so,” he said. “All we can do is pray.”

He switched off the overhead light, put the car in drive, and drove out of the parking lot. We grew silent as we passed the naked trees lining Pine Street in our city of Rome, New York.. We crossed the intersection at James Street and made our way toward Black River Boulevard.

While my father was anxious and crestfallen, I felt elated as I gripped my book bag in the passenger seat. The CT scan with contrast had confirmed my suspicions, indicating a grave medical condition was responsible for my growth failure at age fifteen, offering a reason why my body had not changed, why I had not progressed through puberty, and why I remained so different from the other boys my age. I still considered myself a physical anomaly, but the tumor proved it wasn’t my fault.

I looked down at the piece of paper again and studied the word. Craniopharyngioma. I tried to sound it out in my head while my dad steered the vehicle, and I thought the word would twirl off my tongue like poetry if I rolled down the window and yelled it. Craniopharyngioma. Cranio-Phar-Ryng-Ee-Oh-Mah. It reminded me of onomatopoeia, which I had learned about in my tenth-grade English class.

And here are two related poems:

Case History

Stricken with pituitary insufficiency,
I felt my way through
a stage of delayed puberty.
When adolescence took hold for other kids,
I remained like a boy wrapped in toddler’s clothes.

My face looks older now,
and my body has grown.
But I could not escape
the endocrine impact of that cranial intrusion.
For even though benign,
the tissue overtook me,
and in effect, the tumor
scarred my life and altered my future.

Craniopharyngioma (Youthful Diary Entry)

Craniopharyngioma gave me
an excuse for being unattractive.
I had a problem inside my head.
It wasn’t my fault
I stood four foot eight inches tall
and looked like I was
twelve years old instead of eighteen—
and then nineteen
instead of twenty-four.
I couldn’t be blamed for
my sans-testosterone body
straddling the line
between male and female.

The brain tumor
spurred questions
about my appearance,
aroused ridicule,
and provoked sympathy.
I heard voices whispering:
“Guess how old that guy is?”
And, “Is that a dude or a chick?”

And while I waited for my
body to mature, to fall in line,
and to achieve normal progression,
I remember wishing the surgeons
had left the scalpel
inside my skull
before they closed me up,
knitting the stitches
from ear to ear.

I prayed the scalpel
would twist and twirl
while I slept at night—
carving my brain
like a jack-o’-lantern—
splitting the left and right
hemispheres,
and effacing the memory
of my existence.

Book Giveaway

This week marks two years since my last poetry collection, The Truth I Must Invent, was released. The book is available from the publisher, Poets Choice. You can also find it on Bookshop and a Kindle version on Amazon.

The Truth I Must Invent is a collection of narrative and philosophical poems written in free-verse style. The book explores the themes of self, identity, loneliness, memory, existence, family, parenthood, disability, gratitude, and compassion.

I am giving away three print copies of the book, which I will mail to anyone in the U.S. You can use the contact form or email me directly at the gmail address listed in the form.

The Truth I Must Invent book cover.

Selections from the collection:

Man Inside Nighthawks

I assume I was nothing
before I found myself sitting here,
staring straight ahead.

I can’t move my head.
I can’t smoke the cigarette
pressed between the fingers
of my right hand or drink the cup
of coffee resting on top of the counter.
I can’t touch the woman seated next to me
or talk to the other men in the diner.

This is my life: suspended in warm, yellow light,
trapped in a soundless environment—
no water running, no fan whirring, or grill sizzling.
No sirens or street sounds beyond the glass.

Time drags on with no discernible shift—
no transition to morning.
Here, night never ends.

Yet my mind still works.
In fact, it never stops.
I’m cursed with thoughts that run continuously.

Why am I here?
And where exactly is here?
What purpose do I serve?

Do I have a past? Did I live elsewhere,
before I became frozen in this moment—
captured and imprisoned for eternity?

If only I could talk.
If only I could open my lips and make a sound.
Then I could scream for help.
But who would hear my voice?

If only I could stand up
and walk around,
stretch my legs and
stare outside the window.

But since I can’t move,
the composition will remain unaltered,
as I will stay locked in place
inside this painting,
hanging on a gallery wall.

Looking Through Spindles

I climb out of bed and clutch
the white balusters at the top of the stairs
as harsh words fly behind walls
too thin to hold my parents’ rage.

My sister creeps out of her room,
shrugs her shoulders,
and moves toward me in the hallway,
passing the door to the master bedroom.
She sits down next to me
and whispers, “What happened now?”
“I don’t know,” I say.
And we listen for clues, trying to determine
the cause of the latest fight.

Did Dad come to bed drunk
and make advances on our mother?
Did she recoil or lash out, scratching his eyes?
But we hear no violent action
on the other side of the white door—
only voices laced with acrimony.
And we remain seated on the stairs,
exhausted but unable to fall back asleep.

Zooming out, I see those siblings
in a Polaroid image, sealed under a plastic sheet
in a leather-bound photo album.
And as the adult looking back,
breaking the fourth wall,
I wonder why this memory pricks my brain
when so many others would illuminate my parents’
kindness, decency, and exemplary work ethic.
Why, when I could have chosen from
a myriad of positive scenarios,
does this one seize my attention,
demanding to be chronicled?

My mother and father are both dead
and can’t defend their actions.
And I feel riddled with guilt
for tarnishing their memories.
I also understand that the truth
doesn’t always tell the full story.
My conscience obligates me to explain that
while Mom and Dad weren’t perfect,
they loved us and endured sacrifices
to make our lives a little better.
And while that’s a weak way to end a poem,
the wider perspective allows me to
forgive my mother and father for being human—
for being real people and not just my parents.

Craniopharyngioma (Youthful Diary Entry)

The brain tumor
spurred questions
about my appearance,
aroused ridicule,
and provoked sympathy.
I heard voices whispering:
“Guess how old that guy is?”
And, “Is that a dude or a chick?”

I prayed the scalpel
would twist and twirl
while I slept at night—
carving my brain
like a jack-o’-lantern—
splitting the left and right
hemispheres,
and effacing the memory
of my existence.

Mattress Moment

You don’t get to cry
“No Fair”
Mr. Hyman Roth.

This is the life
you have chosen.

You don’t get to pine
for your salad days,
whatever the fuck that means.

You don’t get to
flip over the mattress
on the bed you’ve made.

The Wanting is the Hardest Part

Tom Petty was wrong.
The waiting isn’t the hardest part.
The wanting is the hardest part.

Wanting fucks everything up—
wanting a better job, a better marriage,
a better house, a better life.
That seed of desire fucks with your head,
makes you think you can be something you’re not.

What if I discarded desire? What if stopped wanting?
What if I no longer sought a better life?
Can I let go of that fantasy
and accept who I am right now,
without seeking a better version of myself—
the idealized me I hold inside my head?

Resolution

You must
Live the life
You have

And not
The one
You want.

Witness

I look up as a group of birds
circles buildings in downtown Syracuse.
I resist the urge to pull out my cellphone
and snap a picture for Instagram.

Instead, I hold my gaze skyward,
letting the wind swirl around my face
and the rain patter my forehead,
as the birds duck in unison
behind a limestone structure—
the moment preserved nowhere except in my mind.

No pictures retained or sound recorded.
No trace of the birds in digital form.
And I think that’s the point, that’s life—
a collection of these impromptu glimpses of existence,
built into a collage, a kaleidoscope of images
demanding attention when presented.

Crying at Bedtime

Nothing prepares a parent
for the tantrums of an autistic child.
There’s no well of patience to draw from.
You adapt. You divert. You distract.
You do whatever it takes to calm the child down—
until you earn that blessed moment of peace,
when his eyelids drop and he drifts off to sleep,
his small body folded in the cradle of your arms.

Fingers in Hair

I run my fingers through
my son’s tangled mop of brown hair
as he lies next to me in bed.
It’s 4:30 a.m. and we can’t fall asleep.

He waves his hands in front of his eyes,
making stimming motions,
and I imagine his head slamming
against the windshield,
a spiderweb crack forming
in the sheet of glass and
blood pouring from
an opening in his skull.

I press my hand to his head
to try to stop the bleeding,
but the crimson liquid
slips through my fingers
and stains the carpet
and fabric seat covers.

I am reminded of a
Gospel passage (Luke 12:7 NIV):
“Indeed, the very hairs
of your head are all numbered.”

I hold some of my son’s hairs
in my hand and realize
I cannot prevent a
car accident, fall, gunshot wound,
or disease from killing my son.
I can’t prolong or preserve his life.
I can only love him while he still lives.

His hands whip in front of his face,
and he prattles phrases
only he understands.
I bury my fingers deeper
into the mound of his hair and whisper,
“Come on now, sleepy time, Colin.”

Forty Years Later

I am celebrating an important milestone today—the 40th anniversary of my first brain surgery to remove a benign tumor engulfing my pituitary gland. I have written about this ordeal many times in the past, including in this long 2014 post.

On this day, four decades ago, surgeons cracked open my skull and extracted the craniopharyngioma that had stunted my growth and delayed my transition from boy to man.

In this essay, I reflect on my experience as a teenager in 1984 while a patient at SUNY Upstate Medical Center (renamed Upstate University Hospital) in Syracuse, New York. I am limiting the narrative period to the day of surgery and my immediate recovery.

Upstate University Hospital

Surgery Day: An Essay

Early morning. Blackness. I can smell the breakfast trays delivered on the hospital floor—watery eggs, ham and bacon, soggy oatmeal, and weak tea and coffee. The noise outside my room grows as patients awaken and nurses draw blood and administer medicine.

My appointment with the medical intervention team has arrived. I am fifteen years old and ready for surgery day, prepared for the trauma that awaits me on the table. My head will be shaved, and my skull sawed open. The tumor growing in my head—wrapped around my pituitary gland and stifling my maturation—will be plucked free, yanked out like an infected molar and then examined under a microscope to determine its classification. We must name our enemies to defeat them.

Once removed, the lesion will relinquish dominion over my body. I will be cut loose from its tentacles. The surgery will disrupt my endocrine system, leading to a permanent condition known as hypopituitarism and propelling me on a long road toward “catch-up” growth and development.

A photo of my father and me two months before the operation in 1984.

A nurse enters my room and hands me a small plastic cup filled with a few pills. “This will just relax you,” she says as I swallow the pre-surgery drugs. About a half-hour later, she returns and says, “It’s time for you to go down now.” A softness squishes against the edges of my mind; I am drifting from consciousness.

An orderly comes to take me away—filling nearly the entire space inside the door frame. A hulking figure with thick, black hair, a black beard, and muscular forearms, he reminds me of Bluto from the Popeye the Sailor cartoons. But for some reason, I call him Hugo.

“OK, Hugo,” I say, “I’m ready now.” Hugo helps me slide over from my bed to a stretcher as the nurse covers me with a sheet and a blanket.

My family gathers around me, bending down to kiss me and wish me “good luck.” What does “good luck” mean on the operating table? I wonder.

Tears stream down my mother’s cheeks, which are red and wind-burned and feel cold against my skin as she kisses my face and forehead; she squeezes my hand and then releases her grip and steps away.

Hugo unlocks the wheels of the gurney and steers it out of the room and into the hallway. Even though I am sleepy, I stay awake for the ride, keeping my eyes open and watching the panels of fluorescent lights pass overhead as we make our way through the hospital corridors and into an elevator. We take a silent ride down to the surgical wing.

The temperature drops when we enter the frigid, sterile operating room. A chill runs over my body; my lips tremble as gooseflesh buds on my arms.

The surgical team members buzz around the operating room, each doctor or nurse carrying out a specific task. They transfer me from the stretcher to the operating table. An overhead light shines into my eyes while I lay splayed on the table.

A nurse covers me with an extra blanket and stretches tight, white stockings over my calves. She says the stockings will help to prevent blood clots after surgery.

One of the doctors sits down near the table and says he will shave my head. When he asks me if I want my whole head sheared or just the front, I make the mistake of telling him to clip only the front. As a result, weeks after the surgery, my hair remains uneven—bald in front and growing long in the back—similar to the long hair sticking out the back of helmets worn by hockey players with mullets.

After they jab an IV in my arm, I grow drowsy, my eyelids shutting; but before I drift off, I tell one of the nurses that I need to pee. The woman chuckles and says, “Oh, you don’t have to worry about that now. We’ve already put in a catheter.”

And then I leave the world—falling under the power of general anesthesia for about eight-and-a-half hours while the surgeons perform their work.

At Walt Disney World in February 1985.

I have often wondered where I traveled to during that gap of time. What realms or landscapes did I explore in my mind while my skull lay open and I remained unconscious on the operating table?

Here is me stepping out of the story momentarily to travel back in time and investigate the scene. It’s a fantasy of the man I hoped I would become once the surgeons extracted the tumor. It’s the future I had envisioned for myself—marked by maturation and normalcy, playing the role of a fully formed male accompanied by a female partner.

A green canopy of trees. A trilling stream. Sunlight filtering through leaves overhanging a hiking path. Birds chirp, and tree limbs sway in the wind.

Boots touch the soft, muddy earth. A man emerges from a wooded path. He is dressed in a red checkered flannel shirt, tan khakis, and hiking boots, and he carries a knapsack on his shoulders. He is about five feet six inches tall, lean and muscular, and has a slight beard.

A twig snaps, and we see a woman walking out of a clearing. She’s wearing a fleece sweatshirt, jeans, hiking boots, and a backpack. The two figures stride toward one another, share a kiss, and then grasp hands. Sunlight bathes them as they leave the clearing and start walking on a path leading over a ridge. They climb the slight incline and disappear as they walk down the other side, their bodies concealed by the curve of the Earth.

Late high school or early college years.

I wake up in a bed tucked in a corner of the surgical intensive care unit. I feel dizzy, and a dull, continuous ache presses against my head as if my skull is being squeezed in a vice. Nurses inject the opioid Demerol into my thighs over several hours to alleviate the pain, and I keep drifting in and out of sleep. I hear machines beeping and the sound of a respirator somewhere on the floor. The gentle sound of the ventilator puts me at ease as I listen to it—in and out, in and out, in and out.

EKG stickers are pressed to my chest, and machines monitor my heart rate and blood pressure. Vaseline has been smeared on my eyelids and eyelashes, clouding my vision, and I feel like I am straining to see from under the cover of a heavy, wet blanket. The white stockings the surgical team had given me are pulled up to my knees and constrict the circulation in my lower limbs.

I feel small—shriveled up in the bed like a green-gray alien being prodded by U.S. government doctors and scientists on an operating table in Roswell or Los Alamos, New Mexico. A scar runs the entire length of my head, from the tip of my right ear to the tip of my left ear. I tap a slight dent in my skull (produced by a right frontal craniotomy during surgery), about the width of two fingers, just above my forehead on the right side.

The stitches itch, and I reach up to feel the thick, black threads. I wonder if I resemble a twisted version of the Mr. Met mascot.

But I feel relieved because I have awakened from the operation, and my brain function remains intact. Some doctors lean over my bed and ask me a series of questions: Do I know my name, the current year, the president of the U.S., and the name of the city I am in? I answer the questions correctly, and when instructed, I squeeze their fingers, wiggle my toes, puff my cheeks, stick out my tongue, and follow a penlight with my eyes.

My senses function properly, as I can see, hear, speak, and smell. I can form thoughts, and the trauma of the surgery has not altered my mental ability or effaced my memory.

My mother, father, sister, and Aunt Teresa huddle around my bed, their faces beaming like those of Dorothy’s relatives in the scene when she wakes up from the dream at the end of The Wizard of Oz.

“Hey, buddy,” my dad says.

My mom leans over the bed rail, kisses my face and eyelids, and says, “You did great, honey, just great.”

“Yeah, Dr. B. said he got most of it,” Dad says.

“Was it big?” I ask.

My mom holds up her right thumb, indicating the size of the tumor. “It was about the size of a thumb,” she says. She caresses my face and adds, “Dr. B. said there’s a little bit left over, but we don’t need to worry about that now.”

“OK,” I say, closing my eyes and returning to sleep.

High school graduation in 1987.

I wake up on the first night with a raging thirst in my parched throat. I feel like I have been deprived of water for days. But because the doctors are concerned about swelling in the brain, they load me with corticosteroids and restrict my fluid intake. My face is swollen, and I feel bloated from the steroids; I am not allowed to drink water, but I am permitted to suck on ice chips.

However, late in the evening, with the lights dimmed on the floor after visiting hours have ended, I turn my head, look around, and notice a sink in the corner, only a few feet away from my bed.

Somehow, despite being woozy, I lower the bed rail, swing my legs out to the side, and climb out of bed. I try to be quiet as I wheel my IV stand toward the small, stainless-steel sink. I turn on the foot pedal faucet, cup my hands, and gulp the water like it’s rushing in an icy mountain river.

The cold liquid pours down my throat and gives me immediate relief. I want to stay here and drink more water, but a man—a male nurse or an orderly—races toward me and pulls me away from the sink.

“What are you doing?” he yells. “You just had brain surgery.”

He then escorts me back to bed, swings my legs over, covers me with the blankets, and lifts the bed rail.

“Now, don’t get up again,” he says. “What do you wanna do, crack your head open and screw up the work those surgeons did?”

And now tucked back into bed, I resume sleeping, drifting off until the next wave of pain hits, and I press the call button to request another dose of Demerol.

Recalling these past forty years, I run a tally of my surgeries at Upstate. The number stands at six—counting the initial surgery in 1984 and the subsequent operations to remove tumor regrowth in 1988, 2011, 2012 (Gamma Knife), 2020 (Gamma Knife), and 2023.

I have some double vision when looking at things up close and to my extreme right (right sixth nerve palsy), and I must be hyper-vigilant in the management of my care to treat my hypopituitarism. But except for my corticosteroid-induced osteoporosis and rheumatoid arthritis (unrelated to the tumor), I am a healthy, middle-aged man.

My next MRI is scheduled for Dec. 18. And with the stubborn resilience of craniopharyngiomas, I know more surgeries (or radiation treatments) loom in the future. But I face each day with gratitude, recognizing how lucky I am to have survived the scalpel on multiple occasions. I also don’t look beyond each six-month window of time between MRIs. Once my current neurosurgeon orders the next MRI, I go about my life without thinking about the tumor still lurking in my head.

Late high school or early college years.

And because of the significance of the number 40 on this anniversary date, I’ll leave you with U2 playing “40” live at Red Rocks Amphitheatre in Colorado in 1983.

Embrace the Futility

This essay was published in the Spring 2024 issue of The Awakenings Review. I’m grateful to editor Robert Lundin for giving me permission to publish the essay on my blog.

In the pediatric surgery waiting room, my wife, Pam, and I sit on a couch, watching a television screen as Facebook CEO Mark Zuckerberg testifies before a House subcommittee about the data-sharing scandal involving Cambridge Analytica. It’s April 2018, and we’ve been here all morning since bringing our two-year-old son, Colin, to the hospital for an anesthesia-induced auditory brainstem response (ABR) test.

The audiologist steps into the room and shuffles toward us with his eyes cast downward. He’s short and balding with grayish-brown hair on the sides of his head. After he directs us to a more private area, he says in a low voice, “He’s doing fine. The test went well. It’s good news from my perspective, but maybe bad news for you. His hearing is fine, perfectly normal.”

“So what does that mean?” I say.

“It means his hearing isn’t the cause of his delayed speech.”

“I knew it. I knew it,” Pam says.

We would receive the official diagnosis of autism spectrum disorder (ASD) a few months later. And as Colin has grown, during moments when he refuses to eat, take a bath, or leave the house, or when he throws tantrums—his face bright red, his arms flapping, and his voice emitting high-pitched screams that reverberate off the walls and ceiling—I have repeated two mantras in my head: “Embrace the Futility” and its softer sibling, “Accept the Inevitable.”

Colin’s room. He loves to line up his toys in patterns,

I use these twin sayings as coping mechanisms to brook the vagaries and hardships of life.

I take no credit for inventing the verbiage of Embrace the Futility. One of my co-workers at a broadcast news wire service in Arizona shouted the phrase several years ago when we were understaffed on the overnight shift and getting inundated with news summaries and audio files sent to us from multiple markets across the country.

Embrace the Futility sounds like a negative concept, but it is a positive and freeing principle (at least for me).

It guides my behavior with one central dictum: I am not in control. The world is a dealer at a Las Vegas blackjack table, and the house always wins. My mental approach is, “Expect the worst and be pleased when it doesn’t turn out that way.”

At an early age, our parents teach us that we will live for a short time and then die. The rules of the game are rigged. We know the score at the outset, and the contest ends in our defeat.

Embrace the Futility and Accept the Inevitable give me the freedom to let go of things I am powerless to control. As a result, I reconcile myself to an existence dictated by failure, sickness, and eventual death.

This is a personal philosophy based on my lived experience; it may not work for everyone. But Embrace the Futility and Accept the Inevitable have helped me to endure the inexorable rough patches in life.

I am consumed with pity for my son, knowing his autism—his diminished ability to communicate verbally—puts him out of alignment with the rest of the world. In this case, love proves impotent to effect change or prevent the hurt he will absorb as he grows.

Colin sitting in the stands on the first-base line.

I understand I am professing ableism. I recognize Colin’s disability should not be viewed as a problem that needs to be fixed. But as a parent, I know his autism dictates his future, making his life more difficult. Colin may never lead an independent life. He may never enjoy what neurotypical kids experience—playing organized sports, going to college, falling in love, and working full-time.

I can’t wish away his autism or intervene to make him “normal.”

I could lament the diagnosis. I could resist—to metaphorically bang my head against a cinder block wall and expect to make an opening. Instead, I acknowledge that I cannot “cure” Colin, and I accept him unconditionally. And amid the many challenges of raising an autistic child, Pam and I savor ordinary moments with Colin, relishing his squeals of laughter and his blithesome presence as he jumps around our living room.

Pam and Colin.

But Embrace the Futility and Accept the Inevitable have universal applications. Your car breaks down. You file for divorce. Bankruptcy, fraud, cancer, a broken femur, or a flooded basement—sure, bring it on.

Embrace the Futility and Accept the Inevitable can help anyone reframe the unavoidable “suckiness” of life. You don’t ignore the mess, but you admit you can’t control it. And it’s OK to let go—to reconcile yourself to what the universe throws at you.

Since age fifteen, I’ve had multiple surgeries and radiation treatments for a slow-growth, benign tumor at the base of the brain, near the pituitary gland. The latest surgical intervention came in July 2023, when a neurosurgeon and an ears, nose, and throat specialist teamed up, taking a transsphenoidal approach (through the nose) to extract tumor remnants that had affected my vision. Even as I write these words, I know the craniopharyngioma will eventually expand in my head and another date on the operating table looms in my future.

I was also diagnosed with rheumatoid arthritis in 2017. The disease has altered my digestion and lung function while leaving me with bent, aching fingers.

And while I do my share of complaining about these medical conditions, I also Embrace the Futility of my body breaking down, since the decline is inescapable.

My late father, Francis Sr., offered the best example of Accepting the Inevitable.

When he was diagnosed with lung cancer in 2007, an oncologist gave him the option of starting chemotherapy, but the doctor stressed the dismal odds of the treatment elongating my father’s life. My dad curled his bottom lip and said, “Why bother? What’s the point?”

Dad, side angle. Photo by Francis DiClemente.

He rejected tubes, injections, and trips to the hospital. He endured his fate with stoicism, making the best of his last six months on earth, placing bets at OTB (Off-Track Betting), racking up credit card debt (which would be wiped out with his death), and eating sweets he had eschewed previously—Klondike bars and Little Debbie snacks—before dying at home under hospice care.

So now, when circumstances beyond my control arise, I follow my father’s model. I submit, acquiesce, and capitulate—assenting myself to a fate I cannot sway. And this allows me to move forward without resistance to the vicissitudes of life.

Eight Weeks Later

Today marks two months since my transsphenoidal brain surgery to remove tumor regrowth. I’m happy to report I’m getting stronger every day. I’d say I’m about 80 percent back to normal. I have returned to work and jumped back into the maelstrom of marketing projects, deadlines, and responsibilities.

Eight weeks post-surgery.

My nose still throbs, and I needed a round of antibiotics for a recent infection of the cartilage. I had a follow-up appointment with the ENT surgeon; he mentioned it will take about three to six months for me to be fully healed—not surprising considering they rolled part of my septum and used it as a nasoseptal flap to patch where the cerebral spinal fluid leaked during surgery. But the good news—the seal at the back near the opening of the sphenoid sinus is holding.

My nemesis: the twice-daily nasal rinse bottle.

I still need to do twice-daily saline rinses and take Tylenol for the pain. I lifted “weights” yesterday for the first time in eight weeks—don’t laugh at my little five-pound dumbbells. I hope to resume heaving fifteen-pounders in a couple of weeks.

Hitting the “weights.”

Two songs have been repeating in my head during my recovery.

Elton John’s “I’m Still Standing.”

And Steve Winwood’s “Back in the High Life Again.”

And here’s a photo from a Walgreens: the gift of a beautiful sight revealed to me on a mundane Friday night.

Sublime sunset from a parking lot. Photo by Francis DiClemente.

Featured Poets Blog

I just wanted to share that I have a couple of new poems published on Osamase Ekhator’s Featured Poets blog. You can find out more about Osamase Ekhator on his personal website. And here’s a direct link to the Featured Poets page.

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