Thanksgiving Poem

Here is a short poem for Thanksgiving. I found it while transcribing some journals for a work-in-progress memoir project.

November 25, 2004 (Thanksgiving)

I exist.
I endure.
I survive.
I go on, for now,
bathed in the light.
That’s something
to be thankful for.

Toledo Trees by Francis DiClemente.

 

 

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Some Days

Some Days

Some days I love my life.
Some days I hate my life.
But I’m thankful for every day
I receive the gift of having
A life to complain about.

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Six-Month Reprieve

I want to share some positive news. I had my follow-up appointment with my neurosurgeon yesterday. Fear gripped me heading into the exam room because the radiologist’s report detailing my latest MRI included this troubling language: “Unchanged heterogeneously enhancing prominence in the right anterolateral suprasellar area, causing mass effect with deformity and right optic tract and proximal portion of the right optic nerve.”

But Dr. H., who is always sanguine, stepped into the room, shook my hand, and sat down, adjusting his glasses and mask, then quickly put me at ease. “We think we got about seventy to eighty percent of the tumor,” he said. He explained the rest—what the MRI report referred to on the right side—was the membrane of the tumor, similar to what’s left over after a balloon bursts. He said he expects the membrane to shrink and form scar tissue.

Although my vision will never go back to the way it was prior to the swelling of the tumor in recent years, I felt relieved when Dr. H. said we can resume a wait-and-see approach, meaning I need no other treatment besides another MRI in six months.

That reassurance was the best present I’ll receive during this Christmas season. Clean, safe, and grateful are the words that hovered in my head when I left the office yesterday. I believe in the power of prayer, especially the petitions made by Aunt Teresa, a Roman Catholic nun in Florida who uses the term “storming heaven” when referring to her supplications.

I am thankful to have endured my latest medical ordeal, but I also know tomorrow could bring a whole new heap of trouble. That’s why I am trying to honor my good fortune by living in the present each day. Of course, this is impossible to do consistently amid the pressures of work and family life.

But I’m trying.

Here are a couple of photos I snapped recently—two visual gifts the universe offered because I was willing to pay attention in the moment.

Snow on Branches 2023. Photo by Francis DiClemente.

Rain Speckled Night. Photo by Francis DiClemente.

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A Textual Thanksgiving

I want to wish everyone a Happy Thanksgiving. I have much to be grateful for this year, as Black Friday marks four months since my transsphenoidal (through the nose) brain surgery on July 24.

I have rebounded. I’m back to running and lifting light weights, and I can sneeze and blow my nose without any concern about bleeding or cerebral spinal fluid leaks. I am so thankful my recovery has been steady and unremarkable, with no complications (fingers still crossed).

Interpreting the medical jargon in my latest MRI report—it seems residual tumor matter is still pressing against the optic chiasm and affecting the optic nerve. And my vision has not been fully restored since the tumor grew back a few years ago (and likely never will be). I still have double vision when looking to the far right in my peripheral field, and I need a prism on my reading glasses, which I use when working on the computer. But I can drive because I have no double vision straight on.

I want to share a few  Thanksgiving-themed poems. I am currently reading Poems 1962-2012 by the late poet Louise Glück.

Here are two poems that struck me and are relevant for the season. I must admit I don’t understand the meaning of many of Louise’s poems, but I thoroughly respect and admire her artistry with language. And the works remain open to interpretation by the reader.

Autumnal by Louise Glück

Public sorrow, the acquired
gold of the leaf, the falling off,
the prefigured burning of the yield:
which is accomplished. At the lake’s edge,
the metal pails are full vats of fire.
So waste is elevated
into beauty. And the scattered dead
unite in one consuming vision of order.
In the end, everything is bare.
Above the cold, receptive earth
the trees bend. Beyond,
the lake shines, placid, giving back
the established blue of heaven.

The word
is bear: you give and give, you empty yourself
into a child. And you survive
the automatic loss. Against inhuman landscape,
the tree remains a figure for grief; its form
is forced accommodation. At the grave,
it is the woman, isn’t it, who bends,
the spear useless beside her.

Thanksgiving by Louise Glück

They have come again to graze the orchard,
knowing they will be denied.
The leaves have fallen; on the dry ground
the wind makes piles of them, sorting
all it destroys.

What doesn’t move, the snow will cover.
It will give them away; their hooves
make patterns which the snow remembers.
In the cleared field, they linger
as the summoned prey whose part
is not to forgive. They can afford to die.
They have their place in the dying order.

And in doing some research, I found another “Thanksgiving” poem, this one by Ella Wheeler Wilcox (1850-1919)

Thanksgiving by Ella Wheeler Wilcox

We walk on starry fields of white
And do not see the daisies;
For blessings common in our sight
We rarely offer praises.
We sigh for some supreme delight
To crown our lives with splendor,
And quite ignore our daily store
Of pleasures sweet and tender.

Our cares are bold and push their way
Upon our thought and feeling.
They hand about us all the day,
Our time from pleasure stealing.
So unobtrusive many a joy
We pass by and forget it,
But worry strives to own our lives,
And conquers if we let it.

There’s not a day in all the year
But holds some hidden pleasure,
And looking back, joys oft appear
To brim the past’s wide measure.
But blessings are like friends, I hold,
Who love and labor near us.
We ought to raise our notes of praise
While living hearts can hear us.

Full many a blessing wears the guise
Of worry or of trouble;
Far-seeing is the soul, and wise,
Who knows the mask is double.
But he who has the faith and strength
To thank his God for sorrow
Has found a joy without alloy
To gladden every morrow.

We ought to make the moments notes
Of happy, glad Thanksgiving;
The hours and days a silent phrase
Of music we are living.
And so the theme should swell and grow
As weeks and months pass o’er us,
And rise sublime at this good time,
A grand Thanksgiving chorus.

Lastly, at a recent appointment at my primary care doctor’s office, I noticed a framed picture of a prose poem entitled “Desiderata” hanging on the wall in an exam room.

The line at the bottom of the page reads, “Found in Old St. Paul’s Church, Baltimore, Dated 1692.” But the piece was actually written in 1927 by Max Ehrman, an Indiana attorney and poet. Some information on the website of Old St. Paul’s Church recounts the story.

And here is the full text. I highlighted some parts that stood out to me.

Desiderata by Max Ehrmann

Go placidly amid the noise and the haste, and remember what peace there may be in silence. As far as possible, without surrender, be on good terms with all persons.

Speak your truth quietly and clearly; and listen to others, even to the dull and the ignorant; they too have their story.

Avoid loud and aggressive persons; they are vexatious to the spirit. If you compare yourself with others, you may become vain or bitter, for always there will be greater and lesser persons than yourself.

Enjoy your achievements as well as your plans. Keep interested in your own career, however humble; it is a real possession in the changing fortunes of time.

Exercise caution in your business affairs, for the world is full of trickery. But let this not blind you to what virtue there is; many persons strive for high ideals, and everywhere life is full of heroism.

Be yourself. Especially do not feign affection. Neither be cynical about love; for in the face of all aridity and disenchantment, it is as perennial as the grass.

Take kindly the counsel of the years, gracefully surrendering the things of youth.

Nurture strength of spirit to shield you in sudden misfortune. But do not distress yourself with dark imaginings. Many fears are born of fatigue and loneliness.

Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here.

And whether or not it is clear to you, no doubt the universe is unfolding as it should. Therefore be at peace with God, whatever you conceive Him to be. And whatever your labors and aspirations, in the noisy confusion of life, keep peace in your soul. With all its sham, drudgery and broken dreams, it is still a beautiful world. Be cheerful. Strive to be happy.

 

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Eight Weeks Later

Today marks two months since my transsphenoidal brain surgery to remove tumor regrowth. I’m happy to report I’m getting stronger every day. I’d say I’m about 80 percent back to normal. I have returned to work and jumped back into the maelstrom of marketing projects, deadlines, and responsibilities.

Eight weeks post-surgery.

My nose still throbs, and I needed a round of antibiotics for a recent infection of the cartilage. I had a follow-up appointment with the ENT surgeon; he mentioned it will take about three to six months for me to be fully healed—not surprising considering they rolled part of my septum and used it as a nasoseptal flap to patch where the cerebral spinal fluid leaked during surgery. But the good news—the seal at the back near the opening of the sphenoid sinus is holding.

My nemesis: the twice-daily nasal rinse bottle.

I still need to do twice-daily saline rinses and take Tylenol for the pain. I lifted “weights” yesterday for the first time in eight weeks—don’t laugh at my little five-pound dumbbells. I hope to resume heaving fifteen-pounders in a couple of weeks.

Hitting the “weights.”

Two songs have been repeating in my head during my recovery.

Elton John’s “I’m Still Standing.”

And Steve Winwood’s “Back in the High Life Again.”

And here’s a photo from a Walgreens: the gift of a beautiful sight revealed to me on a mundane Friday night.

Sublime sunset from a parking lot. Photo by Francis DiClemente.

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Birthday Note

I celebrated my birthday yesterday by relaxing at home with my family. As kids are wont to do, my son, Colin, blew out the candle on the cake, so we had to light it twice.

Colin Joe getting reading to blow out the candle.

I snuck in a couple of wishes, but mostly I felt enormous gratitude for still being here for another day and another year.

The night before I reflected on my recovery from surgery and my birthday, journaling for a few minutes while standing near my bedroom dresser. I am not a habitual journal writer, but I have notebooks scattered throughout the house to be available when the urge strikes me. Often my journal entries—which I always convert to a long-running Word document—contain mundane facts and banal thoughts with no potential to become raw material for a poem, story, or essay. However, sometimes the act of moving my pen on paper will lead me to a line that initiates energy.

And this is what I came up with the other night. It’s not a great poem, but I was happy I wrote it in a spontaneous burst and finished it in one draft.

On the Eve of My Fifty-Fourth Birthday

There has to be more
to this life than
just what we see.

Or else there isn’t—
in which case
death won’t be
so scary.

It’ll just be a
harmless place
devoid of life.

And you and I
can handle that, right?

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Post-Surgery Update

I just wanted to give a quick update on my recovery. More than two weeks have passed since my brain surgery.

I had a follow-up appointment with my ENT surgeon yesterday. For the endoscopic debridement with suction, they stick a probe up your nose and suck out the junk, but I’ll spare you the gory, bloody details.

The last time I had this in-office procedure after the same transsphenoidal surgery in 2011, the surgeon maneuvered the probe too close to my brain stem and I suffered the worst headache of my life.

It felt like a gorilla had grabbed my head and shook my skull like a coconut—side to side and front to back—until my brain swished around and undulated on the waves of cerebral spinal fluid. I almost couldn’t drive myself home afterward.

Hence, I was anticipating a similar experience yesterday. But after Dr. A. performed the procedure, I had only a mild headache throughout the day and into the night.

He also saw no signs of a CSF leak, so I feel incredibly grateful. Although my right peripheral vision loss hasn’t improved yet, I am getting stronger every day and anticipate returning to work before the end of the month.

Thank you very much for the kind words and continued prayers—they are helping me!

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Recovery Update

I never post pictures of myself, but I want to share this photo taken by my wife in our backyard. Eight days have passed since my brain surgery. I’m still a little wobbly, but I am getting stronger every day and trying not to strain myself.

Backyard photo. Credit: Pamela DiClemente.

I am also grateful for being able to soak up the sunshine—standing and breathing on my own. And I wish speedy recoveries for other people enduring health crises.

Thank you for your prayers and kind thoughts.

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Post-Op Notes

Here’s a follow-up to my last post. It’s been less than a week since my surgery, so please excuse my scattered and fragmented thoughts.

A neurosurgery and ENT team at Upstate University Hospital removed a stubborn craniopharyngioma in a four-hour surgery earlier this week.

Upstate University Hospital (Photo by Francis DiClemente)

All test results and surgeons’ notes are posted to the MyChart patient portal, and I love the description of my surgery in ALL CAPS. It reads like poetry to me:

ENDONASAL ENDOSCOPIC TRANSSPHENOIDAL RESECTION OF TUMOR WITH NASAL SEPTAL FLAP

Before surgery, George, one of the neurosurgery residents, stepped into the pre-op room to get me to sign some consent forms. He scared the shit out of me when he ran through the complications—cerebral spinal fluid leak (CSF), bleeding, the need for a blood transfusion, stroke, and death. I thought, maybe I should just get out of bed, put on my clothes, leave the hospital, and let the tumor keep growing until it really messes up my vision.

But I overcame my fear and signed the consent forms. Then I met the anesthesia team, a nurse stuck me with a couple of IVs, and I was off to Fairyland.

I woke up in recovery feeling like only seconds had passed. The pain came in waves—going from zero to eight and centered around my forehead, above the bridge of my nose. I was given fentanyl and oxycodone, while a Foley catheter took care of my urine output.

The neuro team quizzed me: What’s your name? Do you know where you are? What year is it? At first, I said 2013, but then I added ten years to arrive at the correct year.

A parade of surgeons, residents, and interns entered my room in the hospital’s Neuroscience Intensive Care Unit, and someone told me they had encountered a CSF leak, but they patched it with cartilage from my nose. Dr. H., my primary neurosurgeon, said they scooped up most of the craniopharyngioma, but some calcium fragments adhered to structures and had to be left behind.

Craniopharyngioma example.

Lying in that hospital bed—humiliated from lack of privacy, with wires twisted around me, with my gown barely covering my naked body, tumid from the high dosage of corticosteroids—I felt like a wounded animal. After the surgical trauma, I now saw my body as simply an object—a machine that either functions or fails.

And I was now at the mercy of the fine nurses who treated me. I enjoyed my conversations with them, and most were serving as traveling nurses doing rotations at Upstate. And one side note: many of the nurses wore Hoka sneakers.

Because of my persistent headaches, I could not read, watch TV, or even look at my phone. With the wall clock ticking incessantly, I closed my eyes, prayed, and reflected on my life.

This was my sixth surgery if you count two Gamma Knife treatments. And since they didn’t get everything, I wondered, how soon will I be back? Will it be two, four, or ten years? How many surgeries will I need before death claims me?

But when I walked the floor on my second day after surgery, I passed other rooms with patients unresponsive and intubated, and deeper thoughts gave me solace. The words that kept coming to me were nothingness, fragility, and gratitude. I saw myself as a minuscule being with absolutely no control over my body or power to alter my existence. Death could come at any point. This is my fate and everyone’s fate. But I remained alive. I was still here.

And late in the afternoon, two days after surgery, I was discharged. While waiting to get a couple of prescriptions filled at the hospital pharmacy, I was wheeled to the Discharge Hospitality Center. Let me tell you, if you need to be in the hospital, that’s the place to go.

A nurse with blond hair, brown plastic-framed glasses, and wearing orange scrubs, greeted my wife Pam and me, asking us if we wanted a cup of coffee. “Sure,” we said. We enjoyed a cup of coffee and some Lorna Doone cookies while we waited, and I told the nurse that her room was a sanctuary.

Then, while waiting at the circular drive for Pam to pick me up, she asked me about my medical history. When I told her this was my sixth surgery, she expressed concern and said she was sorry I had such problems.

I said, “Yeah, but the thing is, you can’t change it, so you just deal with it. And every time I leave Upstate, I feel lucky that I can just walk and breathe.”

“Right, that’s true,” she said. “That’s a good way to look at it.”

At home, Pam told our autistic son Colin that “Daddy is sick and needs rest.” She put a note on our bedroom door—which has a lock—to remind him not to go inside. With his strong physical presence and his habit of jumping into our bed at night, we need to keep him away so he doesn’t whack me accidentally.

The post-op precautions include no nose blowing and drinking from straws. No straining or lifting more than five pounds. Sneeze with your mouth open and keep your head elevated at least thirty degrees. Pretty simple rules to follow.

I’ll keep you posted as my recovery progresses—slow healing, day by day.

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Post-COVID Winter Walk

I went out for my first real walk since testing positive for COVID, after completing the required isolation.

Branches, sky and building. Photo by Francis DiClemente.

I’m still not at 100 percent, but on this Sunday I was grateful for the combination of sun, sky, snow, air in lungs and limbs moving freely. I’m also thankful I didn’t slip and fall on the sidewalks packed down with ice and snow, resembling a Lake Placid luge track. I’m not taking any days or moments for granted.

A stick in the snow. Photo by Francis DiClemente.

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